Sunday, January 20, 2008

the 'R' word...relapse...

so i have been having some symptoms of lyme again for the past month or so...not super intense and not the same symptom consistently...night sweats, headaches, stiffness, aching, joint pain...the usual symptoms with lyme...but things have slowly been getting worse and thursday night was the worst cognitive symptoms that i have had so far...
last wednesday i went to school at 6am to workout with devon...i got there and couldn't do anything....my body felt heavy and i had little to no energy...devon told me to go home and sleep...i called for a sub and did just that...i slept from 7:30 til about noon...was awake for a couple of hours and then slept again until 5 or 6...was up for a few hours and then slept straight through til 7 am...thursday started out ok...i was really tired but other then that i was ok...i taught all day then headed to the bobcat for my serving shift...this is when things got rough...i couldn't seem to do anything right...i was forgetting about drink orders...i wasn't able to multi-task at all (which you have to be able to do when serving)...i was forgetting how to use the computer to put in orders and cash people out...people were telling me their orders and i wasn't writing down the correct things...i was a mess....
needless to say i walked out of work that night feeling like a complete idiot...i called dominic on my walk home and started crying...i was so scared, overwhelmed and feeling stupid...
this was a bit overwhelming for dominic because i haven't been sharing with anyone really the symptoms that i have been having over the past month so it came out of the blue for him...
i have decided to talk to my 3 different docs and see what they have to say...
so i have come to a few conclusions over the past couple of days:

1. i feel deflated because i thought i had beat lyme and now realize that i haven't yet...
2. i am tired of feeling like it consumes my life...not being able to honestly say that i feel good...
3. i am scared about what the future holds in terms of the lyme disease...
4. i have to keep fighting and this isn't going to beat me!!!

this is a website that i found tonight while doing some more research...
http://www.chroniclymedisease.com/

thank you for all your prayers and support...please read up on lyme disease if you get the chance...it is a very complicated disease that is surrounded by controversy...

a huge thanks and lots of love to dominic for being so amazingly patient with all the ups and downs that lyme takes me on...i love you more then words can say!

1 comment:

Anonymous said...

Hang in there! Hope you are feeling better soon! It's a long road to recovery...but you can do it. We'll say some prayers for you!